TBCK Weekend 2022

Conference + Family Gathering in Philadelphia, PA

Thank you for all who attended in-person and on Zoom! It was a successful day of connection and learning as well as a full weekend for those in person being able to connect with out TBCK Families. Thanks to all who helped make it such a success!

A few things to keep in mind:

  1. Recordings are posted on this page from the weekend. Remember to fast-forward parts as there was downtime. Or check out the chat- lots of great action there!

  2. There was lots of great information shared, the best way to get it is of course the recordings, but also Nikki created a document from the weekend with important links.

    Which is here!

Recordings from the weekend, because it was both in-person and virtual and in English and in Spanish…there’s some downtime. You will need to fast-forward parts. Thanks!

TBCK Conference Gathering November 2019

We are so excited to have everyone together again, in-person!

We are so pleased to announce the return of an in-person gathering this year!

  1. Register for the conference here! Please register for EVERY ATTENDEE, including children. Donations are highly appreciated!

  2. Travel and lodging information is listed below. This must be scheduled separately from the registration.

Register & Book Hotel Seperately!

〰️

Register & Book Hotel Seperately! 〰️

WEEKEND OVERVIEW

Friday:

  • 4-5pm: TBC

  • 6:30-7:30pm: TBCK Warrior Fashion Show at the Sheraton Hotel. Details to come.

Saturday:

Location: Leonard and Madlyn Abramson Pediatric Research Center 3615 Civic Center Blvd, Philadelphia, PA 19104

  • 8am-4pm: Full-day of TBCK Conference featuring the world's top TBCK Syndrome researchers and clinicians, a parent panel, updates from The TBCK Foundation, and lots of opportunities for connecting with other families.

  • The full agenda will be released as we finalize speakers. Plan for a full-day of events with breakfast and lunch provided.

  • 5pm-7pm: Saturday evening dinner outing. Location TBD

Sunday:

  • 8:00-9:00: TBCK Connections Breakfast (provided) at Sheraton Hotel.

  • 9:30am: Family Outing to local Philly attraction (TBD)

Monday:

  • Optional TBCK Clinic (individually scheduled in advance for clinic visits with Dr. Ortiz-Gonzalez and/or Dr. Bhoj) Email: tbckresearch@chop.edu

COVID POLICY

Given our more medically fragile population, we are requesting all attendees to wear a mask if they are able. Vaccinations are strongly encouraged by all eligible attendees. Testing will be available upon request.

HOTELS

**All attendees must schedule their own lodging, use these customized links to get the room rates. Room blocks are a first come, first serve basis.

Sheraton Philadelphia University City Hotel ($175/night)

  • Walking distance to CHOP (~1 mile)

  • Meeting space location for Friday evening and Sunday morning

  • If you want to stay through Monday, please use this link.

Element Hotel Philadelphia ($189/night)

  • Walking distance TO CHOP (a bit longer! 1.6miles)

  • Downtown location

Homewood Suites by Hilton University City ($169/$189 night)

  • Walking distance to CHOP (1.5mi)

Questions? Email tbckfoundation@gmail.com

Want to volunteer to help? Email tbckfoundation@gmail.com

TRAVEL

Airline Travel:

If interested, there may be an opportunity to get a group rate on Southwest Airlines. Please indicate on your registration if you are interested.

Southwest Airlines offers subsidized airfare for people with disabilities. Visit here for more details: https://www.southwest.com/medicalgrant/

Other Programs to Help Support Airline Travel:

Please indicate if your family would be in need of some supplemental financial support. We would require documentation for reimbursement.

The TBCK Foundation is a registered 501(c)(3) charity organization. Please note that we provide this information for the benefit of TBCK syndrome community. We are not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on individualized medical advising from qualified health care professionals before seeking any information related to their particular diagnosis, cure, or treatment of a condition or disorder. The TBCK Foundation is recognized as a 501(c)3 non-profit corporation. EIN 83-3095299.

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