The TBCK Foundation

Theo’s Village:

The TBCK Foundation

RESEARCH, EDUCATION + ADVOCACY

 
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Overview

Theo’s Village: The TBCK Foundation is an organization dedicated to families battling the rare genetic disease TBCK. Named after a gene, TBCK or TBCK-ID Syndrome is an autosomal recessive neurological disease that causes intellectual disability, epilepsy, and developmental disability. Our organization was founded in 2018 only two years after the confirmation of TBCK through research. Learn more about TBCK here.

Mission

The mission of The TBCK Foundation is to connect families and support research for people impacted by the rare genetic disease, TBCK.

Goals

The TBCK Foundation is dedicated to families and is determined to impact the progression of research for treatment. Our plans include:

1.  Helping to promote and fund research.

2.  Engaging, empowering, and educating families impacted by TBCK through resources and advocacy opportunities.

3.  Working alongside researchers to develop protocol for the most up-to-date and best practices for TBCK treatment.

 
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